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Lifestyle and IBD

This resource has been created by the Patient Advisory Council of ImproveCareNow, with input from ICN Community members. In it you will find direct patient experiences, patient-developed information & resource links, as well as professional information & insights. We hope this resource will be used both as a patient & family guidebook, as well as a learning tool for anyone interested in understanding more about how IBD impacts how patients live.

The Patient Advisory Council

The Patient Advisory Council (PAC) is a group of 14+ pediatric IBD patients who advocate for care within ImproveCareNow. We create resources for patients based on our experiences and expertise by healthcare professionals.

The Patient Advisory Council (PAC) is a group of 14+ pediatric IBD patients who advocate for care within ImproveCareNow. We create resources for patients based on our experiences and expertise by healthcare professionals.

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Access IBD resources created for patients, by patients - covering a variety of topics related to life with Crohn's disease & ulcerative colitis.

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The Patient Advisory Council (PAC) is a group of 14+ pediatric IBD patients who advocate for care within ImproveCareNow. We create resources for patients based on our experiences and expertise by healthcare professionals.

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Are you a passionate, pediatric IBD patient? In the PAC, find connection, validation, and a purpose for your chronic disease and help other patients like yourself!

Have questions for the PAC or want to get involved?

Purpose of this Toolkit
Inflammatory Bowel Disease (IBD) can impact the lifestyle of patients in many ways. Here, we highlight how mental health, treatment, diet, exercise, and social life are all impacted by IBD. The purpose of this toolkit is to give an overview of how IBD patients' lifestyles are influenced by the disease, because these topics are important for providers, caregivers, support networks, and patients to keep in mind. To learn more about specific topics, PAC toolkits that go into more detail are linked on relevant pages.

- Patient Advisory Council

Production Team

Co-Creators

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Rohit Aita

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Becky Woolf

Our Contributors

Patient Advisory Council 
Nour Al-Timimi
Shira Futornick
Rosa Kelekian
Fionna Kopp
Vanessa Little
Leela Maitra
Makenna Martin

Lucy Miller
Alexis Palumbo

Quint Townsend
Robbie Wilson
ImproveCareNow Partners
Sabina Ali, MD
Greta Breskin, MS, RDN, LDN
Noel Jacobs, PhD
Michele H. Maddux, PhD
Yuliya Rekhtmann, MD
Jamie Ryan, PhD
Eva Szigethy, MD, PhD

Marc Tsou, MD
Parent Working Group

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Patient Advisory Council
ImproveCareNow
© 2021

Lifestyle and IBD by Patient Advisory Council is licensed under a Creative Commons Attribution 4.0 International License. Credit the Patient Advisory Council in distribution, citation, or any form of reproduction.
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